Where do i even start I haven't written for a while I guess you could say a lot had happen between now and then. I am now in heart failure I have been in mild heart failure for a while now but it has now become more then just mild it had now become a daily struggle for me.
Apart from all my other things wrong with me i not going to list them all my main issue now is my left ventricle is not pumping that well any more and my heart has also become very stiff funny how all this rings to much of a bell to me from before transplant.
I have good days and i have bad days it really all depends on how much fluid is backing up into my lungs, my day to day life is very much changed in the recent months, im tried all the time a good day i will get through the day without a sleep. my breathing is pretty crappy on a bad day walking around the house is a small mission, taking a shower is a lot of energy on a good day i want have as much fluid on the lungs so i can go out and do stuff maybe only stopping to catch my breath every few 100 meters or not at all, it really does depend each day can be different. Before my transplant on bad days i wouldn't be able to eat and would vomit a lot if a had to much fluid on board which has started to happen again not as much as before transplant but on bad days i haven't been able to eat and been vomiting a bit.
so there you have it at the moment life is life before transplant again
fluid on lungs
fluid wherever it feels like going
loss of appetite
i will have good days and i will have bad this is while they call it the invisible illness as you will see me on days and i will look fine but you probable seeing me on a good day, or a day where i feel crap and im trying my hardest to look fine.
To those of you I haven't had much contact with its not because im of having a great time forgetting about you, its because i have been sick and at the moment i have days where leaving the house is a big effect for me.