Tuesday, June 27, 2017

8 Year heart birthday

On the 14 April 2017 was my 8 year heart birthday it was probable my worst heart birthday i had, I spend most of the day crying but thats another story, but then of course my superstar mum saving the day again and took me out to dinner and turned m day around.

Back in Rotorua

So there I was back again in my home town of Rotorua I loved Tauranga but I will always love Rotorua as they say home is were the heart is. My family was there and a lot of my good friends from growing up. I was happy to be home also as my sister was due to give birth soon and I missed been able to see my niece and nephew as often, as I can't have my own children I live those moments though my niece and nephew.

My health still wasn't amazing when I moved back I was holding a lot of fluid which caused me to vomit if my body holds on to to much fluid and pretty much lived on ice blocks for a while there as fluid started building up in my stomach. The only up side about vomiting and not been able to eat  properly is the losing weight bit. So I had a few hospital stays for a while there while they tried to get on top of my fluid. They spent a lot of time changing my frosemide as they do until they finally decided on a dosage. I take my normal dosage a day but when I start to feel extra fluid on board I will take extra which is pretty easy to tell when I have extra my weigh goes up, I feel bloated and can't eat or when I get it on my lungs I get very short of breath and dizzy. Sometimes I will have bad days other days I will have days that I almost feel normal for a bit and just about forgot I'm sick. My health has gotten better sine I got back from Tauranga it's not amazing but I'm not stuck with my head down the toilet as much anymore. It's just a matter of me keeping on top of my fluid only down side is the more fluid I have the more furosemide I take then it up sets my kidneys it's like a never ending battle my kidneys vs my fluid.
One of my best and longest friends on the left and my friends daughter on the right just a few of the times i had to chill in hospital.

I bit of a simplify vision of while my hearts doing what it's doing. As my hearts not working/ pumping that's what they call heart failure as well anymore it's try's to keep up with the body but can't as well anymore which is what causes the backup of fluid into my lungs ect and as the hearts working so hard trying to keep up with my body that's what causes me heart rate issues ect

Monday, June 26, 2017


What have a been doing between dec 2016 and July 2017 good question

Well I moved to Tauranga for a bit.  I loved it there and was so nice been so close to the beach and I had the best flatmate ever now a life long friend and the worst flatmate ever who we had been friends sine we were like 16 then she stole $2000 dollars from me anyway im not giving her anymore time of day on my blog as she doesn't deserve it I just I one thing to say about that, this while u don't get drugs control your life. I just got a transfer from kidi corp / ABC who I was working for it Rotorua. I was a  reliever in whatever daycare needed me it worked out well I worked when I could, when I couldn't because of my health it didn't matter as I was a reliever I just turned down the shift down and there was no 20 questions about while I was always sick. Sadly my health just started going down hill and it got to the point where I was working less and not getting enough money to pay the rent and I started to realise how hard it was living in a town not knowing many people and having to family when I got sick not having that support like I did in Rotorua. I became really sick one night and no one was home I felt to crappy to even walk back to my bedroom and just collapsed onto the floor and crawled to the bathroom and could stop vomiting lucky I had my phone on me and for whatever reason I called my mum even that she was in Rotorua mum been the superstar she is drove over and took me to the hospital, anyway soon after that I moved back to Rotorua and had to give up my job as I wasn't handling working well with my health, short of breath, vomiting , not been able to eat well, trying to keep on top of the fluid and always tried and all the rest of boring heart failure stuff. When my health getting better and i can work again i would like to move back to Tauranga for now i guess we will just see what the future holds.

My awesome flatmate and friend and her son.